I don’t want to change my daughter with Down syndrome. But…


I don’t want to change my daughter with Down syndrome. But…

These words, straight from the heart, perfectly reflect how a daddy feels about his little girl Eden Rose, who was born 2 years ago with Down syndrome.

Col Usher, father of two, was asked a very important question by his 6 yr old son Israel. He was asked, “Does anyone wish Eden didn’t have Down syndrome?” Col thought long and hard and penned this perfect response. You must watch! But you can also simply read his words- just keep scrolling below and watch the must-see video. It’s pure joy, and puts into perfect words the love of any father for his little girl.


This is not the way I’d thought I’d start,
To share this message from my heart.
A question asked from my little buddy
That left Dad feeling somewhat cruddy!

The little voice asked as we left home,
“Does anyone wish Eden didn’t have Down syndrome?”
Mum jumped straight in, with ‘No way, no how!’
While my heart dropped low, and my head took a bow.

Now before you say, “Well, that’s just not right!”
And before you try to pick a fight,
I love Eden Rose more than anyone.
And I hope you understand this when I’m done.

My little girl had all of my heart,
From the get go, right from the start.
She had me wrapped ’round her little finger
That’s why the pain of this question, will linger.

There is nothing to change, not one little thing.
She’s my angel, my dream, she makes my heart sing.
She’s funny, loving, determined and sneaky.
She’s strong, fierce and a whole heap of cheeky!

Her love is bold, pure and true.
Accepting of others, yes even you!
This world unfortunately won’t always see this
She’ll bear the brunt of those who “take the piss”

The thought of this cuts deep for me.
The Father’s heart wants to protect, you see.
I would give all I have and then some,
To save her from other peoples dumb.

Saving from all that hurts or scars,
And to set her high among the stars
A love so deep, it wants to shield her pain
To keep her away from others’ stain.

I don’t feel this way from a diagnosis;
It’s this broken world that brings my prognosis.
The fear of ‘different’ that eats away,
It stops us from just saying G’day.

There is nothing here that you can catch.
But a beautiful relationship just might hatch!
If you stop for a moment and truly see,
It’s not the “dis” but the ability.

My angel was sent to me from above,
To show us what it means to love.
So after all this, it’s not her, it’s us
WE need to change our prejudice.

-Colin Usher.

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