Tag Archives: birth diagnosis

What Your Child With Down Syndrome Might Do

It can be a scary place, the first moments after your child with Down syndrome enters the world.  There are no guarantees in life. Having a great love, following a true passion, having a child.. it’s all a gamble. You won’t always take the most worn and travelled path as you create your own life story.. […]

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downs side up

A Delivery Suite Diagnosis of Down syndrome – for Medical Professionals

  The way in which a delivery suite diagnosis of Down syndrome is communicated is often done in a dissatisfactory manner. The firm diagnosis of Down’s syndrome on phenotypic grounds is usually possible immediately after delivery.  It is essential to inform the parents, at least of your suspicions, as soon as possible after delivery.   […]

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I don’t want to change my daughter with Down syndrome. But…

I don’t want to change my daughter with Down syndrome. But… These words, straight from the heart, perfectly reflect how a daddy feels about his little girl Eden Rose, who was born 2 years ago with Down syndrome. Col Usher, father of two, was asked a very important question by his 6 yr old son […]

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“What’s wrong with her?” 10 things you should never say to the parent of a child with Down syndrome

  Didn’t you have the test? Not that it’s any of your business but if you must know, no I didn’t! Prenatal testing would not show me HOW FREAKIN’ AWESOME she would be. It wouldn’t tell me how smart she would be, how quickly she will learn things. Nor how she sits on the couch […]

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Why one mother wishes your baby had Down syndrome too

Kate has a little girl with Down syndrome. When she asked me to proof read a post she wrote for her Facebook page, it was such an honest and emotional read I had to publish it on this website, too! Kate writes; “I read a question today posed by a mum who has just had […]

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