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Girl With Down Syndrome Posts Letter to Doctor Who Wanted Parents To Abort Her

“This is Emmy, mailing our letter to the prenatal specialist who didn’t want her to live. He repeatedly suggested we abort. He said her and our quality of life would be horrible.” Emmy’s mother Courtney Baker says, “He was so unbelievably wrong. I want to do something to advocate, but other than my letter to him, I […]

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What Your Child With Down Syndrome Might Do

It can be a scary place, the first moments after your child with Down syndrome enters the world.  There are no guarantees in life. Having a great love, following a true passion, having a child.. it’s all a gamble. You won’t always take the most worn and travelled path as you create your own life story.. […]

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What to Say When a Baby is Born with Down Syndrome

 So, you hear the news that someone in your family, a close friend or an acquaintance has given birth to their baby. Great news!     But within seconds you are told that the baby has Down Syndrome.   “Oh…. “ [There follows a mixture of disbelief, shock, stunned silence, anger, hurt, disappointment, perhaps a […]

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downs side up

A Delivery Suite Diagnosis of Down syndrome – for Medical Professionals

  The way in which a delivery suite diagnosis of Down syndrome is communicated is often done in a dissatisfactory manner. The firm diagnosis of Down’s syndrome on phenotypic grounds is usually possible immediately after delivery.  It is essential to inform the parents, at least of your suspicions, as soon as possible after delivery.   […]

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The 8 Most Googled Questions About Down syndrome- Answered

This is a compilation of the top 8 most Googled questions about Down syndrome. I’ve added accurate, up to date resources to each, and answered the questions. Please don’t mistake me for a paediatrician or a genetics expert. You’re not going to get overly formal answers to the Google searches in the blog below. I’m not […]

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You Know You’re A Special Needs Parent When…

You know you’re a special needs parent when… You pack exact required change for 2 chocolates from the hospital vending machine while waiting for an ambulance. You own more snot-suctioning devices than is either reasonable, or anticipated. Your invitations to BBQs and get-togethers dry up. You have a hospital bag, toy bag and food bag […]

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I Became a Hospital Mum And Lost My Name

Two years ago I became the mother of a beautiful newborn. I sat upstairs alone in a hospital room the night he was born — a 9 lb pound boy in a neonatal cot downstairs alone, on long term oxygen. While I lay in the birthing suite minutes after his arrival, the doctor informed me […]

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