Share Girl With Down Syndrome Posts Letter to Doctor Who Wanted Parents To Abort Her By Kat Abianac / June 7, 2016 “This is Emmy, mailing our letter to the prenatal specialist who didn’t want her to live. He repeatedly suggested we abort. He said her and our quality of life would be horrible.” Emmy’s mother Courtney Baker says, “He was so unbelievably wrong. I want to do something to advocate, but other than my letter to him, I […]
Share 11 Things You Stop Giving A Crap About When You’re A Special Needs Parent By Kat Abianac / May 15, 2016 You spend the first few years of being a special needs parent just keeping your head above water and finding your feet. You deal with the discovery not all special needs parents have as much in common with you as you originally thought. You make the leap from the original large fishbowl you found, of […]
Share What Your Child With Down Syndrome Might Do By Kat Abianac / February 18, 2016 It can be a scary place, the first moments after your child with Down syndrome enters the world. There are no guarantees in life. Having a great love, following a true passion, having a child.. it’s all a gamble. You won’t always take the most worn and travelled path as you create your own life story.. […]
Share What to Say When a Baby is Born with Down Syndrome By Hayley Goleniowska / February 2, 2016 So, you hear the news that someone in your family, a close friend or an acquaintance has given birth to their baby. Great news! But within seconds you are told that the baby has Down Syndrome. “Oh…. “ [There follows a mixture of disbelief, shock, stunned silence, anger, hurt, disappointment, perhaps a […]
Share A Delivery Suite Diagnosis of Down syndrome – for Medical Professionals By Hayley Goleniowska / February 2, 2016 The way in which a delivery suite diagnosis of Down syndrome is communicated is often done in a dissatisfactory manner. The firm diagnosis of Down’s syndrome on phenotypic grounds is usually possible immediately after delivery. It is essential to inform the parents, at least of your suspicions, as soon as possible after delivery. […]
Share The 8 Most Googled Questions About Down syndrome- Answered By Kat Abianac / December 20, 2015 This is a compilation of the top 8 most Googled questions about Down syndrome. I’ve added accurate, up to date resources to each, and answered the questions. Please don’t mistake me for a paediatrician or a genetics expert. You’re not going to get overly formal answers to the Google searches in the blog below. I’m not […]
Share You Know You’re A Special Needs Parent When… By Kat Abianac / November 8, 2015 You know you’re a special needs parent when… You pack exact required change for 2 chocolates from the hospital vending machine while waiting for an ambulance. You own more snot-suctioning devices than is either reasonable, or anticipated. Your invitations to BBQs and get-togethers dry up. You have a hospital bag, toy bag and food bag […]
